Phone 4325 7369     Fax 4339 2307     Email us.

Skip Navigation Links.
Collapse Issue 419 - 15 May 2017Issue 419 - 15 May 2017
Collapse  NEWS NEWS
Group granted $100,000 to solve doctor shortage
Pearl Beach properties vulnerable, says coastal plan
Council could divert Budget money away from Peninsula
Dredging needed now to keep ferry, says Chamber
Jetski riders argue for responsible use
Liesl Tesch is sworn in
New dune to be built at southern end of Pearl Beach
Ettalong residents in long-distance drive for charity
Charged with property damage and theft
Drainage work considers rare bushland
Surf patrol captain describes dramatic rescue
Commercial fisherman starts digital publication
Rotary presents Pride of Workmanship awards
Residents given 30 days to comment on council budget
Labor forum compares Robertson to Wentworth
Films shown by Bouddi Society
Fire station open day
New levy with rates
Lifejacket van visits Patonga
Collection for Mary Mac's
Empire Bay Probus Club forms
Craft group to hold high tea
Trash and treasure raises money for fire brigade
New name for refurbished market stalls
Mortgage brokers listed as awards finalists
Rain recorded on just one day
Collapse  FORUM FORUM
Pothole exercise is excuse to do nothing
Halt DA supported by 'theoretical strategy'
Peninsula might end up with no representation at all
Anzac Day at Patonga
I will fight for the people of Gosford West ward
A far cry from former Prime Ministers
Collapse  HEALTH HEALTH
Mobile dialysis in Umina
Fundraiser for accident victim
Cupcake challenge for Cancer Council
Planning to support the Cancer Council
Volunteers are thanked with special lunch
Spreading the word about polymyositis
What aged care is wanted?
New psychologist at private hospital
Burpees on the beach
Collapse  ARTS ARTS
Weekend of music at Pearl Beach
Illustrator gives presentation to Rotary club
Farce to open for Woy Woy Little Theatre
Lime and Steel to play at folk club
Exhibiting at the Botanical Gardens
Collapse  EDUCATION EDUCATION
College wins grand champion purebred steer award
Parents ask for help to learn for Naplan tests
Comprehensive heritage calendar
Senior boys win Woy Woy Cup
Maintenance works
Primary parents invited to College forums
Wins in softball and football
Live broadcast
Collapse  SPORT SPORT
Cycling medals for Hugh Gray
Volunteers wanted for Nippers with special needs
First win to Woy Woy
Lorna Buckworth Shield played at Umina
Zac wins Rookie award
Bowling club holds rescheduled charity day
Stableford competition at Everglades
Bridge winners
Men's Fours

Spreading the word about polymyositis

Ron and Fay Spratt of St Huberts Island want to spread the word about a little-known condition suffered by less than 10 in a million people.

Ms Spratt was diagnosed with polymyositis 12 months ago but said she believed she may have had it for two years before that.

The first symptom was fatigue, she said.

"I was going back and forth to the doctor and one of the other symptoms was that I couldn't swallow properly so I had been put in hospital to have my throat stretched twice but it did not make any difference.

"Then I was told to go off my cholesterol tablets but that didn't help so finally I was sent to a neurologist who sent me for a muscle biopsy," she said.

Ms Spratt had to be put under a general anaesthetic so a sample the size of a sugar cube could be taken from her side and sent for testing within 12 hours of its removal.

"A muscle biopsy is the only way to get a positive diagnosis," she said.

Since diagnosis, Ms Spratt said the tiredness remains along with the difficulty to swallow.

"I need a glass of water next to me when I eat or the food doesn't go down properly," she said.

She also has difficulty standing up and experiences pain in her hips and profound weakness in her legs.

"I can't walk any distance on my own because I could fall over," she said.

She is currently having immunoglobulin infusions each month at Gosford Hospital, attempting to avoid taking Prednisone, the most common treatment for the condition, due to its side effects.

May is Myositis Month and Ms Spratt, as a sufferer, understands exactly what that means, along with fellow members of the support group she attends on a monthly basis.

Myositis Month is aimed at building awareness amongst the medical fraternity and health providers about one of Australia's rarest diseases.

Myositis Australian Association spokesperson, Ms Anita Chalmers said: "With increased awareness, we should get an earlier and more-accurate diagnosis and appropriate exercise advice.

"Current estimates place between five and 10 people per million Australians as afflicted across each of the three major forms of myositis: dermatomyositis, polymyositis and inclusion-body myositis.

"There is also a form which affects children as young as three called juvenile myositis.

"However, the true numbers are not known.

"Myositis is one of 80 auto-immune diseases affecting about 10 per cent of the Australia population.

Ms Chalmers said incorrect diagnosis also compounds the problem and hinders more precise analysis.

Since symptoms differ between individuals, myositis is hard to diagnose.

In many cases, myositis is associated with other autoimmune disorders of connective tissue such as scleroderma, systemic lupus erythematosus, rheumatoid arthritis, Raynaud's syndrome, and Sjogren's syndrome.

Typical early signs include: muscle weakness in thighs and shoulders; unexplained general tiredness and fatigue; difficulty standing up from a seat or floor; difficulty climbing stairs; falling down unexpectedly, weak grasping of objects and difficulty swallowing, or a reddish purple skin rash.

There may also be severe pain, swelling, rash/infection, temperature and blood pressure changes.

The underlying cause of all the inflammatory muscle diseases is unknown.

They are classified as auto-immune diseases because the primary activity is the body's immune system attacking its own tissue.

Comments


Add a comment
Comments entered here may be published in the Forum section of Peninsula News. Name, full residential address and daytime telephone number are required, but only name and suburb will be published. This is a moderated forum: Contributions will not appear here until they are approved by the editor. Contributions may appear in an edited form.


Name:
 
Address:
Suburb:
Telephone:
Comment:
 

 
  • GillespieP

    pictures/300_GillespieP.jpg

    GillespieP

  • SwearP

    pictures/300_SwearP.jpg

    SwearP

  • Pearl1P

    pictures/300_Pearl1P.jpg

    Pearl1P

  • BashP

    pictures/300_BashP.jpg

    BashP

  • DrainP

    pictures/300_DrainP.jpg

    DrainP

  • RescueP

    pictures/300_RescueP.jpg

    RescueP

  • FishyP

    pictures/300_FishyP.jpg

    FishyP

  • PrideP

    pictures/300_PrideP.jpg

    PrideP

  • FilmsP

    pictures/300_FilmsP.jpg

    FilmsP

  • MaryP

    pictures/300_MaryP.jpg

    MaryP

  • ProbusP

    pictures/300_ProbusP.jpg

    ProbusP

  • TeaP

    pictures/300_TeaP.jpg

    TeaP

  • MintP

    pictures/300_MintP.jpg

    MintP

  • BusP

    pictures/300_BusP.jpg

    BusP

  • JozzaP

    pictures/300_JozzaP.jpg

    JozzaP

  • VilVolsP

    pictures/300_VilVolsP.jpg

    VilVolsP

  • SprattP

    pictures/300_SprattP.jpg

    SprattP

  • NicoleP

    pictures/300_NicoleP.jpg

    NicoleP

  • TheatreP

    pictures/300_TheatreP.jpg

    TheatreP

  • LimeP

    pictures/300_LimeP.jpg

    LimeP

  • GoldP

    pictures/300_GoldP.jpg

    GoldP

  • SteerP

    pictures/300_SteerP.jpg

    SteerP

  • CultureP

    pictures/300_CultureP.jpg

    CultureP

  • CupP

    pictures/300_CupP.jpg

    CupP

  • TeamsP

    pictures/300_TeamsP.jpg

    TeamsP

  • HughP

    pictures/300_HughP.jpg

    HughP

  • LawnP

    pictures/300_LawnP.jpg

    LawnP

  • BridgeP

    pictures/300_BridgeP.jpg

    BridgeP

  • FoursP

    pictures/300_FoursP.jpg

    FoursP



Search this website

What's On
.
<May 2017>
SunMonTueWedThuFriSat
30123456
78910111213
14151617181920
21222324252627
28293031123
45678910
(Click for details)


Skip Navigation Links.

Skip Navigation Links.
  Copyright © 2017 Peninsula Community Access Newspaper Inc